The ethics of consent in research with vulnerable populations

Introduction

 

Point 1 :Different interpretation on the term “vulnerable”, can be an grey are for researcher to identify the potential participant. (from Reading: The concept of ‘vulnerability’ in research ethics: an in-depth analysis of policies and guidelines )

In the field of scientific research, research on vulnerable is considered to be a fundamental ethical issue. Despite various study has been done on the term vulnerability , the concept of itself  is still being describes as “vague”(1).  …….  Claim that most of the policies and guidelines only cover the concept of vulnerability but without clearly define it. Thus, researchers can only reply on implicit cognition about the nature of vulnerability, and further provide support.

Point 2 :Can “The Mental Capacity Act” identify all the weak population without the  capacity to consent (The UK Mental Capacity Act and consent to research participation: asking the right question)

 

Point 3: Question the existence of REC is sufficient to protect the right of weak population who without the capacity to consent ( Can the third party enough to protect them/ utilize the figure 4 to illustrate the concept of REC – from the reading: How ethical is ethical research? Recruiting marginalized, vulnerable groups into health services research)

 

 

 

 

 

Point 4: Possible harm that a participant might receive in a study (e.g. three types of harm: traditional ethics issues, ethics in action and indirect harm)

It is widely acknowledged that vulnerable population require special care on them. However, Hollands, Williams and Forrester (2014) states that it would be unfit to apply monotonous approach  in accordance with the international approved guidelines or codes.  Since ethical challenge can not be predicted and become apparent only retrospectively with research (5.). This requires an ethical action in which researcher actively analyse and are ready to respond to possible ethical hazards rather than relying solely on approvals received be‐ forehand (6.). Munthe and his colleagues (8.) states that current ethical standards are insufficient to be a bulwark against the indirect harm which might occur in the study. Munthe and his colleagues attributed this indirect harm to the way that participants are represented to the research community and the wider society. Moreover, this type of in‐ direct harm is especially salient amongst stigmatized groups, be‐ cause the prejudice against them is so persistent. Even when subjects are presented in an objective way(12.) From this perspective,

 

 

 

 

Argument 1: Avoiding discrimination and exclusion ( e.g. Reading: Strategies to Promote the Inclusion of Young Adults With Developmental Disabilities in Community-Based Health Studies / Toward Ethical Research Practice With Deaf Participants)

 

.

Argument 2 : what is unethical. State that weak population can benefit from the research (dementia study) / “You Can’t be Cold and Scientific”:

Community Views on Ethical Issues in

Intellectual Disability Research

 

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